PATHOS independent living

PATHOS Prevention and care of Alzheimer’s disease Through ICT HOme-based Support & Services

PHC 20 – 2014: Advancing active and healthy ageing with ICT: ICT solutions for independent living with cognitive impairment

Alzheimer's Disease (AD) is the most common type of dementia. It represents more than 50% of the prevalence of dementia cases in the European population.An increasing number of contemporary studies are focussing on the possible benefits of non-pharmacological approaches to cognitive impairment in patients with AD. As the disease progresses, the symptoms include cognitive impairment and also changes in behaviour, such as irritability and aggressiveness.

Behavioural disturbances represent the primary cause of institutionalization of AD patients since they dramatically increase the suffering of the patient and the caregiver’s burden with a significant impairment of quality of life for both. In addition to global cognitive impairment, neuropsychiatric disturbances can lead to a reduction in functionality and difficulty in the performance of Activities of Daily Living (ADL).

In this context, the project aims at tackling this issue by adopting an integrated approach, aimed at

•             Improving independence and well-being of the person affected by AD, along with enhancing the quality of life of their informal caregivers.

•             And consequently delaying the institutionalization of the person with Alzheimer’s disease,

•             Reducing social costs

The added value of the project lies in the effort of involving the whole system surrounding “people living with dementia”, (i.e. patients and their families) by providing them with the ICT tools and knowledge which enables and empowers them to face the disease and its consequences.

The PATHOS project relies on an intervention model based on providing tools and knowledge gathered together by a portal accessible by patients and caregivers (by means of a tablet provided by the consortium). In order to minimize costs, and to meet the needs of each local context, each of the partners involved in a Pilot Study will set up (or adapt) its own portal, however the project will provide a means for sharing knowledge and tools among the different portals (ICT Open Platform). This will bring an added value allowing the sharing of tools, information and knowledge, thus enhancing the set of resources available for patients and caregivers.  In order to access the Portals, and to use the provided ICT tools, caregivers and/or end-users will need technological devices such as tablets and/or smartphones, and will need to be able to use them.

The main objective of the portals will be to provide patients and caregivers with easy access to:

  • training (for formal and informal caregivers, and end-users as well)
  • support/tools for informal caregivers (basic information on the disease, on the pharmacological therapy , FAQ, call-center)
  • tools for prolonging and stimulating functional and cognitive capacity, as well as physical exercise
  • local maps describing the area where the patient lives in terms of:
◦     available services to support them and their caregivers;
◦     meeting and socialization
◦     friends and other patients (with easy access to communication channels) 

18 international partners coworking in the submitted project

List of participants

Participant No *

Participant organisation name

Part. Short Name

Country

1 (Coordinator)

Regione Liguria

RLI

IT

2

SI4LIFE – Scienza e impresa insieme per migliorare la qualità della vita scrl

SI4Life

IT

3

 Ospedali Galliera Genova

OGE

IT

4

Fondazione Don Carlo Gnocchi ONLUS

FDCG

IT

5

Universitat  Politècnica de Valencia

UPVLC

SP

6

Kronikgune

KRO

SP

7

Regional Health Service Madrid - University Hospital of Getafe

SERMAS HUG

SP

8

Liverpool John Moores University

LJMU

UK

9

Merseycare NHS

MNHS

UK

10

CENTICH

CENTICH

FR

11

University Hospital of Angers

Anger

FR

12

Instituto Pedro Nunes

IPN

PT

13

Hanze University of Applied Sciences

HANZE

NL

14

Roessingh Research & Development

RRD

NL

15

Technical University of Crete

TUC

GR

16

University of West England

UWE

UK

17

The TICSalut foundation

TICSALUT

SP

18

Centre for Connected Health & Social Care

 PHA

UK